I had my 6 month follow-up with my neurologist a few weeks ago. Everything looks great! I'll go back in a year as long as my symptoms from the chiari malformation don't get worse before then. I'm still having severe headaches (accompanied by occasional ringing in my ears and vision problems)...maybe 1 a month that is BAD (like stay in bed all day bad) and 2-3 more in in a month that require meds, but I can still deal with everyday life. I also have pressure when I bend over or turn my head suddenly, and blacking out (not passing out, just everything goes black for a few seconds) when I stand up suddenly. It sounds a lot worse when I type it out than it actually is. At least I think so...
Tuesday, November 9
can't sleep
I had my 6 month follow-up with my neurologist a few weeks ago. Everything looks great! I'll go back in a year as long as my symptoms from the chiari malformation don't get worse before then. I'm still having severe headaches (accompanied by occasional ringing in my ears and vision problems)...maybe 1 a month that is BAD (like stay in bed all day bad) and 2-3 more in in a month that require meds, but I can still deal with everyday life. I also have pressure when I bend over or turn my head suddenly, and blacking out (not passing out, just everything goes black for a few seconds) when I stand up suddenly. It sounds a lot worse when I type it out than it actually is. At least I think so...
Sunday, October 31
Hey all...
Monday, September 6
Saturday, August 21
Guess what?
Wednesday, August 18
Have I created a monster?
18 month pics
Saturday, August 14
um...
Saturday, June 19
Homemade Salsa
Thursday, June 17
I'm very blessed.
We went to a friend's house to watch Dear John. I really just wasn't impressed. I've talked to people who thought it was great... not so much for me.
Jaina did WAY better with bedtime tonight... only got up a couple of times and she was on her way back to bed when I "caught" her.
OK, I gotta go to sleep. My eyes are starting to cross. Nighty-Night!!
Wednesday, June 16
WHAT have I gotten myself into!?!?
She was really good for church tonight. I'm worn out but she was really good and she is learning fast! Then Wal-mart (ugh) and home.
She's been out of bed an uncountable number of times tonight. I think I may take my book to the hallway instead of going back there to constantly check on her. There's an idea...
Tuesday, June 15
Oh, and by the way...
I think a housewarming party is in order...
Well
Greg and I went and played racquetball for a little while tonight. We got a friend to keep Jaina. Her grandson is in town and they needed to play. :) It's nice to get a little "date" once in a while!
Monday, June 14
Yay
Sunday, June 13
Jaina's Favorite Website
She will sit and watch this and stay entertained for quite a while, which is unusual for a very busy 16 month old. :) The only ones I've looked at are the "Christian Songs."
Thursday, June 3
Wednesday, June 2
Chiropractor
Not much going on.
Monday, May 24
Bedtime
Sunday, May 23
Pics
Busy
Saturday morning we got up and had breakfast with the family. We went to see my Granny for a little while and went to see my Grandpa and his wife (I may as well start calling her Grandma Betty like Jaina does...).
We took Jaina to Garvan Gardens. It was pretty fun and she really enjoyed it, although it was pretty hot and she fell asleep towards the end. I think she'll enjoy it more next year or the year after when she can walk longer and we won't have to take the stroller. I should have worn comfy shoes, but I guess I'll know next time. Jaina had lots of fun looking at the flowers, but I was a little disappointed. I thought there would be more flowers (and a bigger variety of flowers) and less woods. It was still a fun day and I really enjoyed spending time with my little family. :)
Ummm...
Grey's Anatomy
Tuesday, May 18
Soooooooooo tired.
I think I'm headed to bed now...
Tuesday, May 11
Short and simple
I'm back at work... half days and/or less than 3o hours. No more sleeping until 9:30. I don't like getting up before Jaina.
I can drive. I'm not confident enough in my driving abilities to drive any more than around town, but I can drive.
And now for the one I'm most excited about... My Mother's Day gift... Greg is painting the bedroom for me. :)
Friday, April 30
Jaina's words
Daddy
Mom
Jaina
Ya-ya (my mom)
Jo Jo
Dog (she can't tell the difference between a cat and dog)
Eat
Bite
Good
Cracker
Banana
Hot
Bear (pointing at the bear on my UCA shirt)
Clap
Eye
Ear
Nose
Thanks (or Thank You)
Welcome
Light
Uh-oh
Elmo
Book
Pretty (when pointing at her painted toenails)
Yes
No
Tickle (every time she sees bare tummy or bare feet she "tickles" us)
Shoe
Hi
Bye
Gone or "gone gone" (when she's through eating)
Here (when handing us something)
Coke (because she's figured out she likes sugary sweet stuff)
Look
That's 34. I'm sure she knows more than that, but won't remember them until she says them! She won't say toes, knees, fingers, or head, but she will point to them. If we ask her a question she will either nod her head or shake it for no. I can pretty much tell her to go get me anything and point and she will.
Oh, and when we sing the ABC song she sings with us, but none of the letters are right! LOL!
Edited-because we remembered some more to add
It's Friday
I'm sitting in the living room with the windows open. The cool air feels so good! I think we're fixing to have to make a Wal-Mart trip and run a few other small errands. Woohoo. We might have to wait until after Jaina's nap... it's about that time.
I'm really starting to get bored. I have one more week off work. I go back on April 10th. At least that's the plan right now. I've still not really decided if I'm going to try part-time for a little while to get myself back into the groove of things.
It's Toad Suck Weekend!!! I doubt I'll go, but I really want one of those awesome corn dogs and Greg wants some of the fresh squeezed lemonade. I'm completely fascinated with watching Stuck on a Truck. I could never do that. I'd be the first one out. LOL.
Thursday, April 29
No title
I got my hair cut today. It's shorter and I really like it. She even showed me how to fix it and it will only take a few minutes. My appointment was at 11 and then we took Jaina to Chick-fil-a for lunch. We were gonna let her play on the playground, but it was right at noon and it was FULL of kids.
Greg worked on the front yard for several hours today. It looks like a yard now. All the brush is gone and he said he's going to finish mowing it tomorrow. Apparently this new medication is a miracle drug... he was able to take Jaina to church last night (without me) and even spoke during class. I'm really proud of him considering all he's been through. Most people don't even know half of it.
Wednesday, April 28
stuff
Jaina took her diaper off twice yesterday. Once she was in bed napping and once she just walked up to Greg and handed him her diaper. I'm not ready for this.
Yesterday I managed to get a couple of loads of laundry done and the dishes washed. That took me several hours (and we didn't have that many dirty dishes... Greggers washed them the day before).
Fast forward to several hours later... since I never finished that blog and just left it up on my laptop...
Anyways, today was long, Jaina is asleep, and I'm about to go to bed.
I spent most of the day just not doing anything, got up and started getting ready for church, and just decided I'm too tired and worn out... I just don't feel good.
Tuesday, April 27
Yesterday
I managed to get some stuff done... by some I mean a couple of hours of stuff that normally would have taken me only 30 minutes, if that. I wrote some thank you cards and went through all the mail for the last 5 weeks. I hadn't paid any bills except the ones that come out automatically, so that was fun *insert sarcasm here*.
Monday, April 26
15 month check-up
Sunday, April 25
My vision
That was going to be the end of this post, but I decided to put all my complaints together in one post to make it look like I complain less.
My neck hurts and is stiff, so I can't turn it without pain. My back hurts. I wonder if a chiropractor can help me...
I want to go to sleep but I can't sleep. Off to find the Tylenol PM...
Oh, and I'm really grumpy today.
Thursday, April 22
Any suggestions?
I've been bored
I've really been wanting some pizza and cheese sticks... I've been watching a lot of TV lately (due to the boredom thing again) and the new Digiorno Pizza and Breadsticks commercial has really been getting to me. Tonight when the person bringing us dinner called and asked if we wanted pizza instead of a home-cooked meal I was super excited.
Happy 15 months to my baby girl! I'm trying to make a list of words Jaina knows, just because I want to count them. She has about 20 she says all the time and more she says occasionally. She also talks 24/7 even though I have no idea what she's saying, gives lots of kisses (complete with the "muah" sound), and blows lots of kisses (particularly to random old men in Wal-mart). She really understands a lot of what we're saying, and probably more than I give her credit for. I've really noticed this in about the last week. I can tell her to go pick something up for me or bring me something and she normally does. Oh, and she also barks like a dog and makes monkey sounds. We were sitting outside a couple of days ago and the dog across the street started barking, so of course my child started barking back.
Jaina went to Bible class for the first time last night. Her teachers said she was so good! I'm excited about being able to pay attention in class again or maybe even teach. I was kind of expecting someone to come get me half-way through the service, I guess mainly because I didn't really know what to expect, but she was a good little girl!
Wednesday, April 21
Today
Jaina was so good the entire time. The only time she really got fussy was when we went to Sam's and I wouldn't let her drink all of my Icee. Once we got back to Conway, we took her by the bank to see her friends (my co-workers :P) and went by Lowes to get some stuff for the yard. After 2 years we are planting a tree and some grass in the yard!!!
Monday, April 19
Sunday, April 18
It's almost 8.
Thursday, April 15
Time for bed. Have to get up in a couple of hours for my IV. I'm getting tired of that but at least it's only for a few more days. It's like having a newborn again. At least my baby girl only got up a couple times during the night and started sleeping like her daddy when she was just a few months old. She got to bed late tonight (about 10) so she'll probably sleep until at least 9 in the morning if we don't wake her.
Night all.
Urgh.
Monday, April 12
My child
Jaina's learned how to walk sideways. It's funny. We painted her toenails for the first time Saturday night and she's been doing it since. Not all the time, but that's when she started it. I am constantly amazed at how smart she is. She knows how to point to all the places on her face (eyes, nose, mouth, ears) and her list of words is growing every day! She loves to blow kisses. It's hard to believe she'll be starting Bible class in another month and half. She seems too little. I'm looking forward to it though...
Sunday, April 11
Feeling better
Wednesday, April 7
Ok, now you're current.
Someone from Church brought us a huge meal Tuesday night and my Aunt Joy is bringing us something tonight. I'm back to eating 3 meals a day, although still losing weight.
My mom is bringing Jaina home tonight! I miss that little booger so much! I have to call her at least once a day. Most days more. Last night I was singing to her and she was giving me kisses over the phone. It was so sweet!
Monday
They tell me about 10 AM they are going to discharge me as soon as I get my last IV and Home Health will be coming to my house at 5 PM to set up my IV's for the night and next day. I will be connected to the IV 24/7 and have a pump that gives me a dose of antibiotic every 8 hours. Someone from Home Health will come and change my IV bag once a day. THEN they change my meds (after they've been delivered for me to take home) and tell me that I'm actually going to have to have 2 antibiotics and that Greg will have to administer them for me or if he's not able I will have to do it myself. I think I would actually prefer to only be hooked to the IV for 30 minutes 3 times a day. There's a lot less of a chance of Jaina pulling on something she shouldn't. The nurse from the Neurology office finally came by about 4:00. Actually she came by earlier, left to get me pain meds, and never came back... It had been 2 days since I'd really been able to talk to anyone and I had a list of questions. I was absolutely not leaving until my questions were answered. We also finally talked them into giving me something besides Darvocet for pain. It was really not doing anything for the pain and only lasted a couple of hours when it did work.
I was discharged about 5:45. When we got home we were waiting on Home Health and they never showed. The hospital neglected to tell us that they wouldn't be coming out to the house until the morning.
Sunday
I felt really good on Sunday. Didn't do much but just chill at the hospital.
Saturday
The doctor came in and talked to us for a good 15 minutes or more. He said that after going over my MRI from the night before and comparing them to pre- and post- surgery MRI's that the area where he did the surgery looks perfect. He may even use it in lectures. After all of my new symptoms and consulting with the other doctors in the practice and going over my scans again, they've concluded that I have Chiari Malformation. I picked that particular website because it was the first one I read and I have every symptom listed with the exception of 1. It kind of shocked me when I read it because some of them I didn't realize were related and hadn't even mentioned to my doctor. He said that my symptoms may resolve themselves once my spinal fluid builds back up or he may (as a last resort) have to go in and correct the problem. He then discharged me and told me I could go home. We got out to the car, got buckled in, and started to pull away when the nurse comes running out of the hospital and tells me that my blood cultures came back showing infection and that I have to come back in and have a PICC line inserted so I can have IV's at home.
I'm re-admitted to the hospital and have the PICC line inserted. I would also like to insert here that when I went to the ER I asked for one since I knew it would save me a lot of pain, but they said no and I ended up being stuck with a needle lots and lots of times. A caseworker came to my room and said she was trying to verify that my insurance would pay for home health and get someone to come out to my house and set everything up for the IV's. Since it was a weekend and a holiday, no luck there. The hospital could verify my insurance but Home Health couldn't verify my insurance until Monday and the hospital would not send me home without an IV. So I get to chill at the hospital for 2 more days so I can get an IV every 8 hours.
I sleep about 4 hours Saturday night.
Tuesday, April 6
Friday night
I had another "episode" as I was leaving the ER, but it was not as bad. This time I was able to keep control of my arms and legs. I knew what was happening when it started happening and had been told to flex my arms/hands/legs if it happened again. It didn't last as long and I calmed down in just a few minutes.
I had at least 2 more instances (these were not dramatic enough to be "episodes") over the next few hours where my face went numb and that (thankfully) was all that happened. I had a very painful next few hours that involved many blood draws, IV's, and pain medication wearing off after an hour.
I had ANOTHER "episode" about 1:30 AM. I was having to keep my arm straight because every time I would move my arm the IV would come out. My face started going numb and I thought at first that was all that was going to happen. About 15 minutes later my hands and legs started going numb and I woke up my sister to get the nurse. A few minutes later I lost control of the muscles in my face (so they could really understand what I was saying) but I was able to flex my arms and legs and not lose control of them. It took me about 45 minutes to stop shaking and calm down from this one. My sister crawled in bed with me and basically held me down to keep me from shaking and kept telling me to "sniff the roses and blow out the candles" to get my breathing regular. She's such a good little OTA. :)
By this time they were telling me I was having anxiety attacks and the numbness was from me hyperventilating. I refuse to believe this because every time my face started going numb first. We learned later that my Dilantin level was low, which can cause numbness, and my theory is that when my face and hands started going numb and I became unable to move my hands I may have had anxiety attacks.
The rest of the night consisted of (in this order) leg ultrasound to make sure I had no blood clots, another IV where I had to lay flat on my back without moving my arm for an hour, a lung CT, a 45 minute wait on a stretcher in the hall, and some kind of heart scan (I want to say it was an X-ray, but I'm not sure). Everything was normal. I can't wait to get this hospital bill... the last one was $64,000.00. THANK GOD for insurance!!!
I haven't updated this thing
Friday I went for the CT scan. I had to wait FOREVER. OK, maybe not really forever but when you're so sick you can't hold your head up an hour feels like forever. While I was in the waiting room, I had what we are going refer to as an "episode" since no one seems to know exactly what happened. My face and arms/hands started to go numb and clench into fists. I had no control of my arms or hands and had difficulty speaking. The people who saw what happened thought I was having a seizure. My mom went to get someone and they brought a stretcher to the waiting room and took me to the ER. (This happened to be during the Good Friday Mass and someone had pulled the fire alarm, so there were all kinds of flashing lights and sirens... NOT a good thing for someone who has just gone through something like that and has a migraine-style headache!) After I got to the ER it took them another 30 minutes or so to get me calmed down, did blood work, got some morphine for pain (I just had to mention to the ER doctor that my doctor wouldn't give me anything but Darvocet for the pain and he made sure I got something while I was still in his care), had an MRI, and was admitted until they could figure out what was happening.
Thursday, April 1
Wednesday, March 31
Blogging
I feel like all I do on here is complain, but it helps me! It also helps me remember all my symptoms so I can look back if I need to.
This morning started off really bad... On a scale of 1-10 (1 being a minor annoyance and 10 being reserved ONLY for childbirth) my pain was about a 8. I stayed in bed until about... well I have no idea, but I know at some point I tried to eat breakfast and lunch. I ended up taking a muscle relaxer and going back to bed. I just rested and slept off and on most of the day. Greg moved the TV to where i don't have to lay on my back to watch movies in the bedroom. My neck is too stiff to turn my head and my head starts hurting when I'm up for more than 30 minutes or so.
I feel a lot better now. I managed to eat a little bit for dinner and am fixing to drug myself up on Tylenol PM and a muscle relaxer so I can sleep.
I miss my little pookey bear. :(
Tuesday, March 30
Bad day...
Today has been my worst day so far... I woke up around 7, but didn't actually get out of bed until 11 or so. We had to drive to Little Rock to get my staples out. I was fine while she was taking them out but I got sick as soon as we walked out of the office. I'm one of those people that lacks the ability to throw up, so I stood in the hallway dry heaving and just wishing I could get anything up for a few minutes. It was not fun. I haven't been able to eat anything today and I feel all shaky and sick to my stomach.
My mom met us in Little Rock and Papaw and Betty are going to keep Jaina for us the rest of the week. Greg said I was doing too much. :( I'll miss the little booger but I guess it's more important for me to get better.
I still can't wash my hair until tomorrow... oh, well. I guess I've had enough excitement for one day! The nurse did say I can take Tylenol PM to sleep so MAYBE I'll get a full night of sleep tonight.
Monday, March 29
Tomorrow
I only slept about 4 hours last night/this morning. I woke up about 4 AM with my entire left side in pain. I almost feel like I have a pinched nerve or something and I can't sleep on the other side for fear of being smacked in the back of the head by a certain heavy sleeper... named Greg... yeah.
We went and picked up my prescription for glasses and I ordered some online. I've never ordered any from here before, but I got 2 pairs for $20 with shipping. If I like them, I may just order more and have a different pair of glasses for every outfit. OR not. :)
The positive side of all this is that I've lost about 15 pounds without even trying. I'm thinking that might be motivation I need to keep up with it this time. I weigh less now (by about 10 pounds) than before I got preggers with Jaina.
I have decided
I woke up this morning to breakfast in bed, Clifford the Big Red Dog blaring at the top of the TV, and a sweet little girl running around with my (clean) underwear on her head. It just doesn't get any better than that. LOL.
We have to make a trip out of the house today. This should be interesting. My glasses are about to fall apart (my mom already took them and got them repaired enough to hold me another few days or so...) so I need to get some more ordered before they completely disintegrate... I'm just not feeling up to wearing contacts right now.
Sunday, March 28
So tired...
I noticed earlier when writing thank-you cards that my handwriting has changed a little and it takes a lot of effort for me to sit and type something out. It's almost like my fingers are moving faster than my mind can think. Kind of scary. I get my staples out Tuesday so i might mention something to the nurse then, but surely that's somewhat normal, right?
I might have messed up and picked up Jaina today... all 24 pounds of her. She was throwing a little tantrum and hit her head on the floor, so I had to! I'm learning really fast that I can't do that! We figured out tonight that everything just goes a whole lot smoother if I just sit in the floor and let her play with me instead of me trying to get her to hang out with me on the couch. She's a lot happier that way and can come and go as she pleases... not to mention I'm a lot less likely to forget and try to pick her up.
OK, I guess I'll go to bed. I'm putting it off because I think if I stay awake later, I won't wake up until morning. My headaches are the worst during the night and if I wake up during the night I will sometimes be up for a couple of hours before I can go back to sleep.
Friday, March 26
Back among the living!!!!
Apparently I had the only 2 side effects of my surgery that my doctor had never seen... double vision (considering he operated no where near that part of my brain) and my left vocal chord was paralyzed. I'm almost back to normal. I still have a massive headache (and am loopy on pain pills...woo hoo!), but I'm sooo much better.
Thank you so much for all the cards, phone calls, flowers, food, and especially PRAYERS over the past couple of weeks. Love you all!
Tuesday, March 16
Update from Greg
She will be in ICU at least until tomorrow. I'll get a room number at St Vincents when I can. She's in a lot of pain and nautious but the worst should be behind us.
Thanks to everyone for the help and visits as well as keeping us in your thoughts and prayers.
Greg
Monday, March 15
Jordan should be updating everyone on facebook and I might be able to talk Greg into updating this blog. She'll also have my phone so feel free to text if she forgets- 501-514-8383.
And to answer the question EVERYONE has been asking me the past few days... No, I'm not worried. I have faith in God and faith in my doctor. I am a little nervous, but who wouldn't be?
Saturday, March 13
Ok, well...
As everyone already knows, I am having surgery March 16 at St. Vincent’s. I have to be there at 5:00 AM and they said they would take me back about 7:30. I have a small tumor on my brain that I have known about for a few years. It was found “accidentally” when I started having headaches and was sent for an MRI, although the tumor is not what causes my headaches. I have most likely had it since birth. At first I was told that it would never really grow and I would probably never have to have it removed. My pregnancy seemed to set it off and it has grown by about 30% within the last couple of years. It is not affecting me in any way right now, but could start at any point. My surgeon (Dr. Krisht) feels confident that this is a benign tumor, but that will be checked after it is removed. The surgery should be relatively simple (if that can be said for a brain surgery) and, in my doctor’s words, “If you are going to have a brain tumor, this is where you want to have it.” The surgery should only last a few hours and I should be in the hospital less than a week, provided there are no complications. My total recovery time/time off work is a minimum of 8 weeks.